By Meg
Patient living with vEDS
My two children and I have vascular Ehlers-Danlos Syndrome (vEDS).
vEDS Fact Sheet
A download that includes talking points to help start the conversation and educate others about vEDS.
As a patient, mother, and registered nurse, I believe we need much more awareness around this disorder.
Our physicians need education. Not just about Ehlers-Danlos syndromes as a group, but about vEDS in particular, because it's so different from other forms of EDS.
We need a break. We need something that's going to put vEDS in the spotlight so that people understand what this disease is. Until then, if you have (or think you might have) vEDS, it's important to talk about it with your doctors, friends, family—and anyone else who plays a role in your life.
vEDS Fact Sheet
A download that includes talking points to help start the conversation and educate others about vEDS.
