WE ARE vEDS

WE ARE vEDS

Resources and support for the vEDS community, curated by experts and those living with the unique challenges of the condition.

Living with or caring for someone with a rare disease can be difficult. Finding resources and support from people who understand the unique challenges of vascular Ehlers-Danlos Syndrome (vEDS) can be even harder. We Are vEDS was created to serve as a source of information and support for the vEDS community, curated by experts and those living with the unique challenges of the condition.

LEARNING ALL ABOUT vEDS

Read up on the cause, signs and symptoms, management, and more.

BUILDING A CARE TEAM

See who the various specialists are that treat and manage vEDS.

GETTING DIAGNOSED

Learn about genetic testing and why it is so important in vEDS.

LIVING WITH vEDS

Find content created by real people affected by vEDS, and see how they manage their challenges.

FINDING THE RIGHT TOOLS AND RESOURCES

Download tools and other resources to help you navigate your unique vEDS experience.

Sign up

Register below if you would like to receive the latest vEDS news, tips, and information from Acer Therapeutics.

First name

Email Address

Re-type Email Address

Choose which best describes you

I would like to receive an email with more information about genetic testing for vEDS.

I would like to receive information from Acer Therapeutics.

I would be willing to speak to a representative from Acer Therapeutics about my experience with vEDS in the future.

The personally identifiable information you provide to Acer Therapeutics will only be used for purposes for which you have provided it. Specifically, the contact information you provided (including but not limited to name, email, and ZIP code) will be used to contact you about the subjects you agreed to in the check boxes above. When you submit personally identifiable information, you consent to its disclosure and use for the above purposes. We may share your information with our partners who facilitate the delivery of this information.