Voices of vEDS
Creating a meaningful dialogue in the vascular Ehlers-Danlos Syndrome community.
Medical information for vascular EDS is hard to come by, and there are few groups and advocacy organizations that focus specifically on vEDS. While the EDS community at large can be a helpful and comforting resource, vascular EDS presents its own unique challenges.
Voices of vEDS is a platform for patients to share stories, tips, and information that is specific to vascular EDS. In the coming months, this page will be filled with articles, videos, and stories made by and for people affected by vEDS. Right now, we're gathering the community and getting their input.
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You may be invited to share your stories, ideas, or tips—we'd love to hear what you have to say! If you'd rather watch from the sidelines, that's okay too. Voices of vEDS is your space.