Creating your care team
Living with vEDS may mean you'll need to work with a variety of doctors to manage your symptoms.
Here are some of the specialists you may work with in your treatment journey.
Primary care doctor
Your primary care doctor is generally your main point of contact. They will refer you to other doctors who focus on specific symptoms you might have.
Cardiologists diagnose and treat conditions that affect the heart and blood vessels.
A rheumatologist can work with you to spot and manage problems with your joints and connective tissue.
You may need to see an orthopedist if you're having problems with bones, muscles, or ligaments in your spine, arms, or legs.
Neurologists specialize in disorders that affect the brain, spinal cord, and nerves.
Frequent pain may be a part of living with vEDS. A pain specialist can work with you to help evaluate, treat, and manage your pain.
At some point, you may need surgery. It's important for you or another doctor to make sure your surgeon fully understands your condition and the delicate tissues they will encounter.
An OB/GYN (obstetrician-gynecologist) focuses on women's health issues, including menstruation, menopause, pregnancy, and conditions concerning the uterus.
The impact of vEDS on your mental well-being is often overlooked. A psychologist might be able to help you sort through difficult feelings.